Amy and me and Argentina
I am doing a "virtual run" for the Amyloidosis Foundation. I recently posted the Introduction to my journal during this run. …
AL-Amyloidose
Op 17 april 2018 vond ik dat ik dikke enkels had. Naar de huisarts, urinetest en teveel eiwit. Nogmaals urinetest en weer veel te veel. …
Long day’s march to clarity
My father was diagnosed with hattr in the late 70’s and died a couple of years later - at the time I was 12 years old, meaning old enough to understand some things about the disease - in particular the severity and hereditary nature of …
Med hjärtat för livet
Hi. My name is Inger S. and I was born in 1956 and I live in Piteå which is in northern Sweden. It all started in the autumn of '13 when I was on holiday with children and grandchildren in Portugal with a stubborn cough …
My Family’s AmyloStory
My mom, Gayle L. B., was diagnosed with Amyloidosis the summer of 2008. …
Decoding Rough Data
We all make mistakes, and we can learn from them. I don’t like to make them if it could severely effect other people, and in this case it could have impacted on two of our children and two of our grandchildren…if I got it wrong. …
A Minha Historia
A Minha Historia não é muito diferente de todas as outras que, são diagnosticados com esta doença, surge num momento em que estas a começar a construir a tua Vida, e de repente, o teu mundo cai. …
A Strange Voyage called MM&AL
I live in the one beautiful old country, located at the intersection of Eastern Europe and Western Asia. It is a part of the Caucasus region, bounded to the west by the Black Sea. …
Amyloidosis: Our family’s curse
Hi! My name is Amanda Wang (nee, Boyd). I am 38 years old; originally from a very small town in Manitoba, Canada; have been married for 7 years; a proud step-mom to a wonderful 18 year old man; and currently living in Toronto, Ontario, Canada; …
The Last Journey
Of all the journeys we planned for our bright future, crisscrossing the globe to foreign and familiar lands, we never thought that this Malevolent protein would steal our passports, our hope and dreams. …
