Home - World Amyloidosis Day

SECOND WORLD AMYLOIDOSIS DAY

TAKING PLACE ON 26^th October 2022

YOUTUBE

Discover the Alliance’s Youtube channel, on which you will find all the videos of the different seasons of the Amylostory.

Discover

Actions 2021

A DAY FOR CONNECTING PATIENTS AND CARERS,

A day for connecting the amyloidosis community to the general public.

Amyloidosis is a rare and complex disease which is barely known by the general public and medical professionals alike.

The objective for the first ever World Amyloidosis Day, organized by Amyloidosis Alliance and patient organisations from 18 different countries, spanning 4 continents, is to alert the world to the diagnostic delay that patients face, which averages 4 years*.

Faster diagnoses and better quality treatment can only be acheived by more widespread knowledge of the disease.

We chose the symbolism of the link for bringing patients, carers and all other caregivers together. Each and every one of us has something to bring to the fight against the illness.

Our campaign is aimed at all: health authorities and professionals, pharmaceutical companies, scientists, associations, etc. Let’s be the link to supporting patients and their loved ones.

THE AMBASSADOR OF THE DAY 2021

Eric Emmanuel SCHMITT

Eric Emmanuel SCHMITT is a successful French-Belgian playwright, author of novels and actors and director.
He was born in 1960 and is a graduate of the Ecole Normale Supérieure, with a degree in philosophy.

He is one of the most represented French-speaking authors in the world. His plays are recreated and reperformed all over the world in national and private theatres.

He began his career as a novelist in 1994 with La Secte des Égoïstes and has received 31 awards worldwide for his writing. He is one of the most widely read authors and the most studied in secondary schools.